Mr. Snuggles- Zane Leland Madaus

Costello Syndrome (G12A), History of Neuroblastoma, Enlarged Heart, Laryngo & Tracheomalcia, Severe sleep apnea, severe Reflux/GERD, optic Nerve Hypoplasia (mostly blind)

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OMSLife Foundation Conference in Cinncinati, OH 2015

April 13, 2015by ShannonK Leave a comment

I was lucky this weekend to be able to visit Cinncinati, OH and attend a conference for Opsoclonus Myoclonus Ataxia Syndrome put together by the OMSLife Foundation, run by Mike […]

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Zane is doing soooo well!

April 30, 2014by ShannonK Leave a comment

I am so sorry I have not updated Zane’s webpage in a very long time!  It is partially due to the fact our computer had a nasty virus… My Dad […]

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8th International Costello Conference, Orlando, FL 2013

August 10, 2013by ShannonK Leave a comment

Thank you so much to everyone who helped get us to the Costello conference in Florida!  We are SOOO greatful and got so much invaluable information and created some friendships […]

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2013 Costello Conference

Dental & Nutrition Workshops- 2013 Orlando FL Costello Conference

August 8, 2013by ShannonK Leave a comment

Again these are my personal notes… they will eventually be up more professionally on the CS website I am sure in the near future.  This is my way of organizing […]

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2013 Costello Conference

Dermatology- 2013 Orlando FL Costello Conference

August 8, 2013by ShannonK Leave a comment

These are my personal notes and if you message me I can send the Microsoft Word doc that I made for myself Dr. Siegl– Dermatologist Hands & Feet: Callouses Hyperkeratosis- […]

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2013 Costello Conference

Cancer Risks- 2013 Orlando FL Costello Conference

August 8, 2013by ShannonK Leave a comment

These are my personal notes… please ask me for Microsoft Word Doc personally if Cancer Risks by Dr. Burkitt Wright & Dr. Bronwyn Kerr There is a published article about […]

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2013 Costello Conference

Physical Fitness, Cognitive & Behavioral Studies- 2013 Orlando FL Costello Conference

August 8, 2013by ShannonK Leave a comment

These are my personal notes.  If you want a Microsoft Word Doc copy of my notes please contact me personally.  This is my attempt to share what we learned at […]

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2013 Costello Conference

Heart, Brain & Skeleton Notes- 2013 Orlando Fl Costello Conference

August 8, 2013by ShannonK Leave a comment

I’ve typed my notes in Microsoft Word also if anyone wants the *.doc please message me personally The Costello Heart Notes- 2013 Orlando Conference Dr. Angela Lin (Ask me personally […]

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2013 Costello Conference

Visual Impairment- 2013 Orlando Conference Notes

August 8, 2013by ShannonK Leave a comment

This lecture was given by a Vision Therapist… these are just my notes.  I thought close family may get a few ideas from this… Im sure there are other CS […]

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2013 Costello Conference

Zane is the new featured Hero on Sierra Rayn Foundation Page

April 2, 2013by ShannonK 4 Comments

Go read Zane’s story and see his cute face on this page: http://www.sierrarayn.org/little-hero-zane-leland-madaus/ The Sierra Rayn Foundation helps families with Neuroblastoma, it was founded by Sierra’s mother, a little girl who sadly […]

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Recent Posts

  • OMSLife Foundation Conference in Cinncinati, OH 2015
  • Zane is doing soooo well!
  • 8th International Costello Conference, Orlando, FL 2013
  • Dental & Nutrition Workshops- 2013 Orlando FL Costello Conference
  • Dermatology- 2013 Orlando FL Costello Conference

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Zane’s 1st Christmas

December 25, 2012
Merry Christmas!

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Shannon Klipstein, LMT

Massage Therapy

Essential Paradise- Holistic Mentoring

Adventures in Mattyland

Costello Syndrome (G12A), History of Neuroblastoma, Enlarged Heart, Laryngo & Tracheomalcia, Severe sleep apnea, severe Reflux/GERD, optic Nerve Hypoplasia (mostly blind)

The WordPress.com Blog

The latest news on WordPress.com and the WordPress community.

Cornish Adoption Journey

Costello Syndrome (G12A), History of Neuroblastoma, Enlarged Heart, Laryngo & Tracheomalcia, Severe sleep apnea, severe Reflux/GERD, optic Nerve Hypoplasia (mostly blind)

Mr. Snuggles- Zane Leland Madaus
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